It's been two months since my brain tumor hemorrhage and emergency craniotomy and things are going well. About two weeks after my surgery I had an intense immune response to the immunotherapy with a full body rash. It was very red, itchy and painful! I was put on Prednisone for three weeks and had to skip one treatment of Opdivo. Prednisone is a rough drug! I had three weeks of barely any sleep and blurred vision from it. It did provide me a great amount of energy which was a nice change! As far as I understand, having an immune response like this is a good thing, it means we accomplished ramping up my immune system which is the whole point of the treatment I'm on. After I tapered off the steroids I was able to continue with the Opdivo, and I've had two more infusions without any problems.
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| The start of my horrible Opdivo rash! |
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| My little visitor while in the hospital, Bree and the boys came to see me |
Another thing the immunotherapy has done for me is give me allergies to things I've never been allergic to. When I was in the hospital for my brain surgery the nurse gave me a headache medicine call Fioricet, which is a combination of caffeine, acetaminophen, and butalbital. I had some leftover at home after my surgery and decided to take one for a headache about two weeks later and had a horrible allergic reaction! A lot of time you discover you're allergic to something the second time you are exposed to it. I had to miss work for a couple days and rest. So frustrating! So I have to add this to my list of new allergies which also includes CT scan contrast.
Yesterday I had an MRI to check on the lesions that we radiated and removed, and it looked great! NO new lesions, and all of the others were either smaller or gone, my doctor even said it looked "fantastic". In two months we will scan again. God is so good.
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| Flowers from a dear friend |
Great news! You are always in my thoughts and prayers. You are an inspiration to many. Keep with the positive attitude. One day yoir wishes will come true. Live and prayers Aunt Kelly and Uncle Robert
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